Category: Health

By Kalvin Valdillez, Tulalip News

“I heard a story recently from a family who received a diagnosis of autism for their grandson,” recounted Nicole Couevas, Family Haven Case Manager. “The grandma told me she didn’t know what to do or where to turn. So, she pulled off to the side of the road and walked up to Jared’s [Parks] house, and knocked. And she said, ‘I need help’.” 

Autism is a common, yet very complex, intellectual developmental disability (IDD) that has significantly been on the rise over the past two decades. According to the Centers for Disease Control and Prevention (CDC), one in forty-four children in the United States are diagnosed with an autism spectrum disorder (ASD) – a statistic that was revealed in a 2018 study. It’s important to note that those reports show that the number of autism diagnoses has nearly tripled since the year 2000. Many are now speculating that since the COVID-19 pandemic, that number has increased even more, as parents were with their children 24/7, and therefore were able to recognize some of those IDD characteristics, and in turn receive an official diagnosis. 

Nicole explained, “IDD covers neurological and developmental; anything that affects cognitive memory skills falls under intellectual. And then developmental can be anything physical. So, under that umbrella comes Down Syndrome, Autism, Fragile X, Fetal Alcohol Syndrome, traumatic brain injury, genetic disorders – so it’s not specific to just autism, though we know that assistance is much-needed in that area right now.”

Those living with an IDD diagnosis often begin showing signs in the early childhood development years and usually receive a diagnosis after the age of three, however, a child can receive a diagnosis as early as eighteen months. Early indicators of autism specifically, include language delay, repetitive behavior, obsessive interests, as well as social and communication challenges. The CDC states that children with IDD have different ways of learning, moving, paying attention, and interacting with the world around them.

Now considering these statistics, and the fact that you’re reading a tribal news article, one might begin to wonder what IDD looks like within the Native community. Historically, statistics in Native America are often underreported due to a lack of resources for reservation-based families in regards to issues such as mental and physical health, substance abuse and addiction, homelessness, and violence against women, children and two-spirit tribal members. And the same could be said about Native children living with ASD and IDD. A study conducted by the American Academy of Pediatrics showed that Native youth are 13% less likely to be identified with autism, while non-Native kids are 1.5 times as likely to receive an ASD diagnosis at a young age. And those low statistics and the lack of available knowledge surrounding IDD tends to lead to negative misconceptions, denial, and a feeling of despair once an Indigenous child is diagnosed with any form of IDD. 

Let’s backtrack to the story of the local grandmother who didn’t know where to go after receiving her grandson’s diagnosis. She immediately went to the Parks family for assistance. This is important because it shows that a handful of tribal members are already putting in the effort to erase any stigmas surrounding IDD, and that they are out in the community raising awareness about autism by sharing their personal experiences. And thanks to the time and care that organizations like Jared’s CORNer, Leah’s Dream Foundation, and the Aktion Club of Marysville and Tulalip have dedicated to the Special Needs community, people know that they are not alone, and that they can get through it with a level head and a full heart. 

If we take a moment to place ourselves in the shoes of that grandmother during her family’s hour of need, most of us wouldn’t know where to turn either. 

Said Family Haven Director, Alison Bowen, “There are people within the community who are doing this work, and we want to hold them up for all the good that they’ve done. But at the same time, they can’t be the go-to for everybody, that becomes hard – being that one person who everybody goes to after a diagnosis. Amy [Sheldon] is amazing, Deanna [Sheldon] is amazing, Jared is amazing, but they need to be able to achieve the goal they are trying to reach too.” 

In that moment, the grandmother made the best call by reaching out to somebody who’s gone through a similar experience. But let’s ponder a what-if scenario. What if, after receiving that diagnosis, the family knew exactly where to go? What if there was a system already set in place that laid out all the resources and possible avenues that the family could take? What if there was someone who they could speak to who was familiar with the Tulalip community and culture, and the advantages that ceremony and ancestral teachings can offer people with IDD? And conversely, what if someone was there to help them navigate all the obstacles that Native families face after an IDD diagnosis, such as the lack of readily available resources due to their location?

Enter the new Family Haven program, the Intellectual Developmental Disability Support for Families. Still in its infancy, the program is being fine-tuned to meet the needs of Tulalip families who are supporting a loved one with IDD. So far, the program has hosted two meet-and-greet gatherings, and they will soon be releasing a survey to get as much feedback from the community as they can in order to tailor the program to best fit Tulalip. 

“Part of our mission is that we want people to know that disabled or not, you are Tulalip. You have the rights that everyone else has the rights to; you have a right to your culture, you have a right to your lifeways,” said Nicole. “We want to dispel these myths about autism. It doesn’t mean that something’s wrong with our families. It doesn’t mean that something’s wrong with the parents. It doesn’t mean that somebody did something, or that someone took drugs or anything to cause this. It’s just what happened. And we know this because there’s no race that isn’t affected by IDD. Autism isn’t something that happens to one ethnic group or religious group, it goes beyond all borders. It doesn’t distinguish between anybody. And what’s most important for the community to realize is that they’re still our kids. And they still deserve as much love, respect, and opportunity as any other kid.”

The IDD Support for Families program was developed to help the community in numerous ways, but its main objective is for families to utilize it to help bridge the gap between the reservation and the resources. The program accepts referrals, and Family Haven is anticipating that most referrals will come from evaluations conducted at the Betty J. Taylor Early Learning Academy and the Karen I. Fryberg Health Clinic, although they will also accept referrals from a family’s primary care physician as well as self-referrals. Any Tulalip family that is ready to receive that additional help, can contact the program at any time for their guidance. And to make the transition as smooth as possible, Family Haven has entered a collaborative partnership with TELA and the Clinic, so if a referral is placed, then the program can offer their assistance early in the family’s journey. Medical diagnoses are not necessary, as the program can help the family navigate that process as well.

Nicole shared, “One of our biggest goals is to support people where they live. We acknowledge and understand that not knowing where to go for help can be overwhelming. We’re willing to be there that first time you meet with anybody [doctors, foundations, organizations, etc..] because it can be so overwhelming. It can make a  difference having somebody there who has that connection with the community and understands not just what a family is feeling, having their child’s new diagnosis brought to their attention, but also understands the culture. That can help make an easy transition for that parent and that child to access those outside services.”

Down the line, the program will expand its services to assist any tribal member with IDD between the ages of 0 to 24. But for now, while the program is building its name and making headway, its focus will solely be the children with IDD who are in the age range of birth to five and are currently in those critical early development years.

Alison elaborated, “Early intervention can dramatically shift how a child does when they go to school, and also their future development. If they have that one-on-one care, or that specialized service that isn’t normally provided within the community, a lot of catching-up can occur, and a lot of gains can be made for that child. And that impacts their future in a good way. 

“Receiving these early interventions for your child before the age of three is easy, and there does not need to be any formal diagnosis. If you are having those concerns, talk with your child’s doctor or just give us a call. We can have somebody come in and share exercises that you can do with your child to help get them caught up. At times, it really may be as simple as that.”

Aside from the important work of providing resources to Tulalip families, the new program has plenty of fun events and activities planned through the summer months as well. Such plans include monthly play groups, where the IDD Support for Families program arranges park outings for the children to help build their social and interactive skills through playtime with other youth from the community. 

The program is partnering with the Arc of Snohomish County to bring new devices and inclusive equipment made specifically to assist children with IDD, such as ADA swing seats and wheelchair swings. And the program is also looking to purchase portable and sensory-friendly equipment of their own, so that families can try and enjoy some of those fun items and activities with their child. 

Another future event that is currently in the works is what is soon-to-be-known as Café Days. At these gatherings, families will be able to join together to share resources, information, and stories with each other. Which is a great way to help each other out while also continuing to build that sense of community as IDD becomes more common and accepted within the society of Tulalip. 

Expressed Nicole, “[Stigma surrounding IDD] is a real thing. Our message about this new program isn’t that we perceive kids with disabilities as disabled, because they’re not. I think a lot of us have this old image in our heads of that special-ed classroom from the 80s and 90s, where you had the kids who were basically hushed and pushed away, and it was us vs. them. But that’s not the world we live in anymore; we’re all one.”

She continued, “We’re not here to say they need to be fixed. That’s not the point of this program. This is to show all the different ways we can help your family to better maneuver in the world with IDD. And also, to make sure we are giving families all the options that are available, and providing them with as many modifications, if needed, as possible, so they have as much as an opportunity as everyone else.”

Be sure to look out for the IDD Support for Families survey, and seriously consider taking the time to complete the survey to ensure that those children and individuals living with an IDD diagnosis receive the best care possible through the new program. 

“We want to hear from the community,” Alison expressed. “What do you think would be helpful for this population we’re talking about? What areas are really lacking? What could we do as a community to better help and assist these families and individuals? The goal is to have people achieve their highest potential, whatever that is for them, and not have as many struggles. Our hope is to assist families who have a diagnosis, and also those families who might not have a diagnosis but have concerns. This whole concept has increased in every community in the last three years. It’s time for us to acknowledge that as a community and wrap around those families and youth who need our help and support.”

For more information, please contact Nicole at (360) 716-4935.

By Micheal Rios, Tulalip News

On the morning of Monday, January 30, community change makers convened for the grand opening of Tulalip’s latest resource designed to combat substance use disorder and an opioid crisis that continues to terrorize our community. Appropriately named the Recovery Resource Center, the remodeled building is intended to serve as a safe space for those actively along their recovery journey in search of resources to get clean, maintain sobriety, or simply desiring to chat with nonjudgmental staff and peers about obstacles experienced.

“We’ve been working on the development of this building for close to a year now, and the time has finally come to unveil this latest project,” said Rebecca Hunter, director of comprehensive recovery solutions. “We brought over the ODMAP team from the court house to work with our clients closely, which allows for a greater level of outreach. Within this Recovery Resource Center, we offer short-term sober living for those getting out of inpatient treatment, we monitor compliance of aftercare recovery, check-ins with recovery counselors, NARCAN distribution, and even offer financial services for those living in Oxford housing.”

An Oxford House is a shared housing residence for people in recovery from substance use disorders. An Oxford House describes a democratically self-governed and self-supported drug-free house. There is no length of stay and the house may have from six to ten residents. There are houses for men, women, men with children, or women with children. Visit wa.oxfordhouse.us for more information and eligibility requirements of Oxford living. 

The newly remodeled building that is the Recovery Resource Center has served Tulalip in multiple capacities over the years. Most notably as the old health clinic, before being the one-time home of Lushootseed and then a domestic violence shelter after that. It’s burnt orange exterior with red trim resembling a rustic torch, lighting the way to new beginnings for those whose life may depend on its resources offered

“Our overarching mission is to work with people as they are. Those coming right off the street and looking for a warm space to stay dry and have a bite to eat, even if for a short while, are much more open minded and accepting to engaging in our services,” Rebecca explained. “It’s another pathway for us to get the education out there and NARCAN distributed so we can save lives.”

According to the latest data available from the Centers of Disease Control (CDC), 250 Americans die every day, on average, from a drug overdose. The number of overdose deaths has increased over time, with a sharp rise during COVID. Making matters more concerning for Native American population centers is the well-known fact that per capita, we have the highest rate of rate of overdose deaths, and that rate has only increased in recent years. This unfortunate, gut-wrenching trend is clearly illustrated in the accompanying CDC chart.  

“Having a drop-in center for people to go to, staffed with friendly, well-informed individuals who won’t judge, but will listen and suggest resources is so important for outreach,” added Rebecca. “We have so many community members in need with recovery, and yet we continue to have more deaths, too, especially among our young people. So where are systems not speaking to each other? Where are our gaps between Behavioral Health, Family Services, and the Health Clinic? 

“Our team is committed to finding solutions and identifying those gaps in service so we can better our services to the community and save lives.”

When your tribe’s leading cause of death is drug overdose, which is and has been the case for Tulalip in recent years, it’s no understatement to say having more resources, more outreach, and more staff trained to recognize the signs of substance use disorder can save lives. Rebecca and her team at the Center are committed to being the change that the community has called for: a group of culturally responsive, judgement-free professionals committed to helping those caught in the trenches make their way out to live long and full lives. 

“Although the grant for our overdose mapping program is coming to an end, we fully intend to continue on that mission to implement as many efforts as we can to combat the opioid crisis and high rates of overdose in Native communities,” said Kali Joseph, manager for the Recovery Resource Center. “One of our goals is to offer a space for our people to come together and feel that connection of community. For those who feel lost, that connection to community may be the exact thing they need to start their recovery journey.

“In order to most effectively reach our people and keep them engaged, we must take a holistic approach to substance use order,” she continued. “Meaning we need to approach it not just physically, but spiritually, mentally, and emotionally as well. We understand the need to raise awareness about how this crisis is related to intergenerational and historical trauma. A lot of times people use substances as a coping mechanism to heal from all that unresolved grief and trauma.”

It’s worth mentioning that the source of so much of that intergenerational and historical trauma that currently burdens our people stems from the now demolished Tulalip Boarding School that operated from 1857 to 1932. On the same grounds where multiple generations of Tulalip children were stripped of their culture and forced to assimilate, where untold horrors and countless wrongs occurred, that is where the newly minted Recovery Resource Center now stands. 

Tulalip’s Recovery Resource Center is here to support all Tulalip citizens in all phases of their journey: whether new to recovery, after a difficult transition, during mental health changes, or now wanting to give back in service to others. A bold initiative to arm our people with the resources they need to build resiliency, acquire strength, and feel empowered to heal themselves and our community in a good way.

By Marisa Chavez, Tulalip Children’s Advocacy Center and Legacy of Healing 

Human Trafficking is a multi-billion dollar criminal industry that denies freedom to 24.9 million people around the world.  Every year millions of men, women, and children are trafficked worldwide, and Washington State has the 11th highest rate of trafficking in the United States. It can happen in any community and victims can be any age, race, gender, or nationality. 

40% of women who are human trafficking victims or survivors identify as Native American or Alaska Native according to a 2015 study by the National Congress of American Indians. 

What is Human Trafficking?

Human trafficking is the business of stealing freedom for profit. It has also been known as “trafficking in persons” or “modern slavery”. In some cases, traffickers trick, defraud or physically force victims into providing commercial sex. In others, victims are lied to, assaulted, threatened or manipulated into working under inhumane, illegal or otherwise unacceptable conditions. 

Traffickers will use violence, manipulation, false promises of well-paying jobs, and romantic relationships to target their victims. 

Traffickers also look for people who are easy targets for a variety of reasons which include psychological or emotional vulnerability, economic hardship, and lack of a social safety net, natural disasters, and political instability. 

Sex Trafficking vs Labor Trafficking

There are many misconceptions of what sex trafficking is. Trafficking rarely looks like what we see in the movies.  We all have a picture in our minds of someone lost in a back alley, suddenly grabbed, suffocated with chloroform, and thrown in the back of a van, only to wake up bound by straps or duct tape or handcuffs. 

Sex Trafficking can occur in any context, such as hotel-based commercial sex, fake massage businesses, street-based commercial sex, residential brothels, truck stops, or escort services.

Labor Trafficking can occur in any industry, including domestic work, agriculture, traveling sales, health and beauty services, restaurants, or construction.

Traffickers use a variety of methods to lure victims into trafficking situations. Language barriers, fear of their traffickers, and fear of law enforcement frequently keep victims from seeking help, often making human trafficking a hidden crime.

The trauma caused by trafficking can be so impactful that many may not identify themselves as victims or ask for help, even in highly public settings.

Who are the Traffickers?

Traffickers usually employ a much less risky and more effective method: grooming.  Grooming involves building trust and taking exploiting vulnerabilities. A trafficker might be a family member, or try to take the place of one, gaining the victim’s trust while brainwashing her or him to see the world in a certain way.

Perpetrators of human trafficking are just as diverse as their victims, and span all racial, ethnic, and gender demographics. Some use their privilege, wealth, and power as a means of control while others experience the same socio-economic oppression as their victims. They include individuals, business owners, gang members, parents or family members of victims, intimate partners, owners of farms or restaurants, and powerful corporate executives and government representatives.   

How do traffickers control victims?

Traffickers employ a variety of control tactics, the most commonly include physical and emotional abuse and threats, isolation from friends and family, and economic abuse. They make promises aimed at addressing the needs of their target in order to impose control. As a result, victims become trapped and fear leaving for myriad reasons, including psychological trauma, shame, emotional attachment, or physical threats to themselves or their family.

Traffickers target vulnerable people who have needs that the traffickers can fill. Sometimes they offer material support – a place to live, clothing, and a chance to “get rich quick.” Other times they offer love, emotional support or a sense of belonging. Kidnapping victims and forcing them into the sex trade through violence is rare.

Where to Get Help

For urgent situations, notify local law enforcement immediately by calling 911. You may also want to alert the National Human Trafficking Hotline described below so that they can ensure response by law enforcement officials knowledgeable about human trafficking.

Call the National Human Trafficking Hotline, a national 24-hour, toll-free, multilingual anti-trafficking hotline. Call 1-888-373-7888 to report a tip; connect with anti-trafficking services in your area.

Legacy of Healing is also available to support victims of sex trafficking. To speak with an advocate, call (360) 716-4100.

By Shaelyn Smead, Tulalip News

Family issues surrounding chemical dependency, domestic violence, and homelessness have created a continued upward trend of Native grandparents obtaining guardianship over their grandchildren.

Traditionally speaking, the concept isn’t too far off from how our ancestors raised their kids. For centuries before us, Native people thrived through communal operations. Rather than families only being responsible for their ‘own,’ families worked together, raised children together, and depended on one another frequently. 

Historically Native grandparents helped raise children in their community out of choice and tradition. However, with certain struggles that today’s world brings, grandparent guardianship has become more about necessity and intervention. Native grandparents have become the glue for many Native households trying to keep their families together. 

Family Haven manager Alison Bowen recognized that grandparent guardianship is nothing new to Tulalip. Still, she has witnessed the increase in the trend as well, “We mostly see grandparents offer to help and take over guardianship. It says a lot about their love for their family and keeping the kids close, safe, and surrounded by their community. Beda?chelh has also taken great strides at approving kinship care and allowing that to happen, which is wonderful,” she said.

Other than some of the obvious struggles that derive from family distress, grandparents, in particular, have their own set of adjusting and obstacles to overcome. A big hurdle is the difference in generations. Many have raised their children in a completely different era and environment than they are now in.

“Understanding concepts around bullying, social media, drugs, and technology are all new to them. Fifty years ago, they might have had a version of these struggles, but as time has progressed, so have these parental stresses. They are being exposed to these new situations and have to adapt quickly,” Alison said. 

The success of these grandparents weighs heavily on the amount of support that they have. A 2019 Journal of Cross-Cultural Gerontology studied Montana’s Grandparents Raising Grandchildren Project’s stressors, resources, and resiliency of rural Native and European American custodial grandparents. In short, the research found that 33% of the Native grandparents suffered from economic distress and were ill-prepared to financially accommodate the needs of childrearing. They also found that living on reservations or small communities brought shame, guilt, and fear of gossip that challenged the uptake of services when eligible.

It was argued that due to Native Americans’ history of traumas from colonialism, cultural genocide, forced relocation to reservations, and residential boarding schools, Native American grandparents suffered a higher level of depressive symptoms. On the other hand, because of these historical events, it forced Native Americans to adapt, and the grandparents scored a higher level of resiliency than their European American counterparts. 

Alison spoke about her admiration for Tulalip grandparents taking on this new role, “To settle down and retire, and then to choose to repeat the childrearing chapter of their lives, is so amazing. You can feel the love that they have for their grandchildren. And whenever kids can stay in their family or community, they feel more connected and like they belong. That’s what any child wants,” she said. 

An anonymous tribal grandparent shared their story, similar to many other grandparents holding guardianship. They obtained guardianship over their four great nieces and nephews in 2020 due to parental mental health and addiction-related issues. Raising four kids under eight years old, lack of energy, exposure to new technology, and adapting to new parenting styles were all obstacles the grandparents had to overcome. But they look at this time in their life to better themselves and have a second shot at parenthood.

The anonymous grandparent spoke about not having parents and how they didn’t want these kids to experience that same trauma, “It was not a question at all when we took them in. We love them, and we had to keep our family together. We wanted their parents to be sober and care for their kids because they were once awesome parents. But it’s just not what happened. We struggled at first in our transition because this wasn’t what we had planned for our life, but we shifted our thoughts and started saying- ‘this is our life,’” they said.

The grandparent also shared their gratitude for how their family has come together and helped them with raising the kids. They expressed how TANF and Beda?chelh have been substantial resources for them.

“The biggest thing I could say to other grandparents experiencing this transition is to enjoy the moment, enjoy the children, and find your support system. Kids are a blessing and can motivate you in ways you haven’t thought of before,” they said. 

Many resources are available for Tulalip families in distress, including Family Advocacy’s programs like Beda?chelh, funding through TANF, Child Advocacy, and Legacy of Healing. Child Youth and Family (CYF) Mental Wellness also provides individual and family therapy, transportation services, and referrals to various psychological services. Additionally, Family Haven provides Teen Outreach Program, Tulalip Peer Support Program, MOMs Group, parenting classes, Family Spirit Home Visiting Program, and the Family Preservation Program.

If you or someone you know needs services, please contact Beda?chelh and Family Haven at 3607163284, Family Advocacy at 3607164320, or CYF Mental Wellness at 3607164224.

By Kalvin Valdillez, Tulalip News

“As women, there are a lot of things that we go through in our lives, and the one thing I always had was beading,” said Tulalip artist, Winona Shopbell-Fryberg. “It is healing. You space everything out and you’re focused on the work. To bead and to continue to do these things, you have to have good feelings and a clear mind. If not, you have to lay it down. When you’re expressing all of that, your emotions come out. There’s a lot of thinking and patience that goes into it and I think that’s a part of the healing process.”

Fifteen local women showed up in support of domestic violence (DV) survivors during the Legacy of Healing’s (LOH) final event for the month on the evening of October 25. LOH hosted several events in recognition of National DV Awareness Month and each event had great turnouts, averaging twenty participants for each gathering. 

DV Awareness Month closed with the Beading as Healing Class. What made this class special was that it was instructed by a Tulalip tribal member whose beautiful beadwork and regalia are well-known not only amongst the sduhubš territory, but also on the powwow trail which her family regularly participates in. 

Winona explained, “I’ve been beading since I was 16 – self-taught. One day I was like ‘Dad, take me to the bead store. I want to learn how to bead’. I just kind of figured it out from there. I’ve had some tips along the way, but it’s been 30 years of beading for me. It’s therapeutic; just to get to know your creative self is amazing. My husband and I made most of our kids’ beadwork. When we go to powwows and see it out there, it’s like ‘wow, I really did that’. It’s just beautiful to see your thoughts and vision come to life through that work. I’ve been beading leggings, moccasins, everything for powwows, earrings, whatever. For me it helps a lot in healing.”

At the center of room 162 were numerous containers filled with beads varying in size and color. Once the ladies selected their beads and received their needle and thread, Winona taught the class how to create beaded keychains. 

The two-and-a-half-hour class was relatively quiet as the students took the opportunity to go inward and spend some time with their thoughts while they worked on their keychains. That was ultimately the LOH’s goal behind the class, but there was plenty of laughter and a number of stories shared throughout the class as well. 

“I started a beaded keychain today, I’ve always wanted to make one of these” expressed tribal member, Veronica Iukes. “I haven’t beaded in a long time, so it was cool to get back out. You get in the zone and start thinking. Doing it bead by bead makes it more meaningful. Each bead to me represents something that I was thinking about. If you’re having a stressful day, beading helps smooth things out.”

The ladies put a good-sized dent in their personal beading projects and before they knew it, it was time to pack up their beads for the night. Winona encouraged them to complete their keychains at home where they can continue healing through a traditional Indigenous artform. Before heading out, many of the participants stopped and chatted with the LOH team, thanking them for creating a safe space where they could learn about DV and gather resources throughout the awareness month.

“Making the keychain today was really calming and peaceful,” said Kelly Waibel, Victims Services Coordinator for the Tulalip Police Department. “The beading helped me feel more centered and grounded. These events provided the people a space to learn during DV Awareness Month. LOH does amazing work, they are here for the victims and survivors of DV, and they support our community. It’s nice that they are able to bring the community together, so the people know they are not alone.”

If you or anybody you know is experiencing an abusive relationship, please do not hesitate to call the LOH at (360) 716-4100 for assistance. And if you are in a crisis or an emergency situation, the LOH provided a list of three additional hotline numbers that you can utilize during your time of need: 

• The National Domestic Violence Hotline 1-800-799-SAFE (7233)
• Strong Hearts Native Helpline: 1-844-762-8483
• Domestic Violence Services of Snohomish County 425-25-ABUSE (22873)