Native American donors needed for bone marrow drive in honor of 14-year-old battling cancer

Sarah Moses | smoses@syracuse.com

By Sarah Moses | smoses@syracuse.com

 

on March 27, 2014 at 11:00 AM, updated March 27, 2014 at 11:02 AM

Christopher Murillo, 20, of Eastwood swabs the inside of his mouth during the bone marrow drive held at the Onondaga Nation in this 2010 file photo. The sample given by Murillo, an Onondaga, was tested to see if he was a match to be a donor for Cazenovia teen who is one-quarter Native American. Native Americans make up about one percent of the 10 million donors on the blood marrow registry. Photo: John Berry / The Post-Standard, 2010
Christopher Murillo, 20, of Eastwood swabs the inside of his mouth during the bone marrow drive held at the Onondaga Nation in this 2010 file photo. The sample given by Murillo, an Onondaga, was tested to see if he was a match to be a donor for Cazenovia teen who is one-quarter Native American. Native Americans make up about one percent of the 10 million donors on the blood marrow registry. Photo: John Berry / The Post-Standard, 2010

 

Nedrow, NY — A bone marrow drive will be held Saturday in Nedrow in an effort to find a match for a 14-year-old Northern New York girl who is fighting for her life as she waits for a bone marrow transplant.

Alyson Stiles is battling acute lymphocytic leukemia and finding a bone marrow match has been difficult because Stiles is part Native American.

Alyson Stiles, from Northern New York, was diagnosed with acute lymphocytic leukemia when she was a toddler. Stiles, 14, is staying at the Ronald McDonald House in Syracuse and receiving treatment at Upstate Golisano Children's Hospital. She is in need of a bone marrow transplant. Provided Photo
Alyson Stiles, from Northern New York, was diagnosed with acute lymphocytic leukemia when she was a toddler. Stiles, 14, is staying at the Ronald McDonald House in Syracuse and receiving treatment at Upstate Golisano Children’s Hospital. She is in need of a bone marrow transplant. Provided Photo

Stiles’ best chance for finding a match would come from a person with Native American ancestry, said Paula Miller, of the William G. Pomeroy Foundation, who organizes local bone marrow drives.

It is very difficult for Native Americans to find matches because there are so few Native Americans donors registered. Miller said there are 10 million registered donors, but only one percent are Native American.

In 2010, a bone marrow drive was held on the Onondaga Nation to find a match for a Cazenovia teen who is part Native American. More than 50 Native Americansjoined the registry during the drive. Miller said those potential donors will remain on the registry until they are 61 years old, but more donors are needed.

The bone marrow drive will be held from 9 a.m. to 1 p.m. at the Nedrow Fire Department, which is located at 6505 S. Salina St., in Nedrow. The bone marrow drive is in honor of Stiles, but potential donors of all racial backgrounds are needed to join the registry, Miller said. Thousands of patients on the Be the Match Registry are searching for a match.

Potential donors must also be willing to donate to any patient in need, not just Stiles, Miller said.

Stiles and her family are staying at the Ronald McDonald House in Syracuse as she receives treatment at Upstate Golisano Children’s Hospital. Stiles was diagnosed with leukemia when she was a toddler. The cancer returned when Stiles was 11 and again recently. Stiles has been sick most of her life.

To be a donor, volunteers must be between 18 and 44 years old and have no history of heart disease, cancer, diabetes or HIV. The collection kit is performed by swabbing the inside of the cheek.

“It’s not painful,” Miller said. “We don’t draw blood. It’s just a quick swab to the inside of your cheek.”

To learn more about the donation process, visit the Be The Match website. For more information about the bone marrow drive in Nedrow, call Paula Miller at 476-3000, ext. 2576.

The bone marrow drive is sponsored by the William G. Pomeroy Foundation and in collaboration with the Nedrow Fire Department, Onondaga Nation Fire Department and Ronald McDonald House Charities of Central New York.

Sarah Moses covers the northern suburbs of Onondaga County and Oswego County. Contact Sarah at smoses@syracuse.com or 470-2298. Follow@SarahMoses315

For Native Americans, Losing Tribal Membership Tests Identity

by DAVID NOGUERAS

NPR

April 01, 2014 3:07 AM

Some of the 79 people told by the Confederated Tribes of Grande Ronde they were enrolled in error. Seated on floor are Russell Wilkinson and Mia Prickett (holding the drum). Seated second row from left are Nina Portwood-Shields, Jade Unger, Marilyn Portwood, Eric Bernando, Debi Anderson, Val Alexander. Standing are Antoine Auger, left, and Erin Bernando. Photo: Don Ryan/AP
Some of the 79 people told by the Confederated Tribes of Grande Ronde they were enrolled in error. Seated on floor are Russell Wilkinson and Mia Prickett (holding the drum). Seated second row from left are Nina Portwood-Shields, Jade Unger, Marilyn Portwood, Eric Bernando, Debi Anderson, Val Alexander. Standing are Antoine Auger, left, and Erin Bernando. Photo: Don Ryan/AP

In western Oregon, members of the Confederated Tribes of Grand Ronde are engaged in a debate over what it means to belong.

The tribe’s enrollment committee is considering kicking out an entire family that traces its lineage back to the founding of the modern tribe more than a century and a half ago. The family is related to Chief Tumulth, leader of the Watlala, a tribe that controlled river traffic along a key section of the Columbia River.

“If you search for ‘Chief Tumulth,’ you’ll find that he’s, as some people claim, the most famous Chinookan chief that there ever was,” says Jade Unger, Tumulth’s great, great, great, great grandson.

After Unger heard about Chief Tumulth as a teenager he began to study the tribal language, Chinuk Wawa, and learned the traditional methods of hunting and fishing. Studying his ancestors, he began to learn about himself.

Eventually, Unger was enrolled at the Confederated Tribes of Grand Ronde. In 1855, Tumulth played an early role in the confederation’s founding by signing an important treaty with the U.S. government.

Unger says for nearly 30 years his family was embraced by the tribe, that is, until last September, when everything changed. The tribe’s enrollment committee told Unger and 78 members of his family that a recently completed audit showed they were enrolled in error.

“I’m not worried about me. I know I’m fine economically,” Unger says. “I’ll make it. But there’s people in my family that are going to be devastated by this, people that are dependent on their elders’ pensions. There are people that are going to lose their homes.”

Back in 1995, the tribe opened its Spirit Mountain Casino, and for the first time, members began to see a financial benefit. Within a few years, the tribe began to tighten its enrollment requirements. In fact, under the new standards, Unger’s family wouldn’t be let in today.

His ancestor may have signed a key treaty in the formation of the Grand Ronde, but Chief Tumulth was killed before the reservation was officially recognized in 1857. Unger says that information was well known to the committee members who approved their applications.

“There was no error,” Unger says. “It was very deliberate and it was unanimously agreed upon that we had a background and we had a right to belong here in this tribe.”

Tribal Council Chairman Reynold Leno wouldn’t discuss pending cases. But he says the audit was needed to correct inconsistencies in the tribal record.

“Tribes are made up of families and families know their own history,” Leno says. “And when you have people that don’t kind of fit into that family-type scenario, it kind of draws a question. And I think that’s what a lot of people wanted looked into.”

While he says any disenrollments that result from the audit are unfortunate, he says the tribe has a constitution — and it’s his job to uphold it.

“It was given to us by the Supreme Court to set standards and regulations for our enrollment, and I think people should respect that,” Leno says.

But both in and outside of Oregon, disenrollments are raising questions. David Wilkins, a professor of American Indian Studies at the University of Minnesota and a member of the Lumbee Nation, estimates that as many as 8,000 U.S. citizens have been cast out of native tribes over the last two decades. And Wilkins worries tribal disenrollments could be putting tribal autonomy in jeopardy.

“At some point there’s going to be enough clamor raised by disenrollees that there is going to be a congressional hearing or there is going to be some presidential proclamation or there is going to be a Supreme Court decision that might seriously impinge on what is a true sine qua non of a sovereign nation, that is the power to decide who belongs,” Wilkins says.

Grand Ronde is still reviewing the results of the audit, which means more disenrollment letters could go out.

Unger acknowledges he might lose his federally recognized status, but he says nobody can take away his identity as a native person.

“That’s, hands down, way more important to me than any little chunk of money I might get in a per capita payment,” Unger says. “I don’t care about that. I care about my tribe. I feel like I belong. We belong.”

And Unger says that’s the one thing he wants to hold on to.

 

Original Broadcast: NPR

HBO Profiles ‘Rez Ball’ Starring Shoni and Jude Schimmel

shoni_and_jude_schimmel

 

Source: Indian Country Today Media Network

HBO’s Real Sports With Bryant Gumbel caught up with the Schimmel Sisters —  a pair they called a “force in women’s basketball” —  to talk about their journey from the reservation to the college  ball court. In the hour-long special that aired exclusively on the network (the program is available until April 14 on HBO on Demand), Shoni and Jude, who grew up on the Umatilla reservation in Pendleton, Oregon, opened up about their success on and off the court.

John Frankel, an HBO correspondent, went to the sisters’ home in Oregon where got a lesson in rez ball and learned that basketball, not baseball, is their national pastime.

Watch the clips below.

 

 

Read more at http://indiancountrytodaymedianetwork.com/2014/04/01/hbo-profiles-rez-ball-starring-shoni-and-jude-schimmel-154262

U.S.-China Talks On Shellfish Ban Lead To New Testing For Contaminants

A geoduck clam from Puget Sound. China's ban on importing such shellfish remains in place, but recent U.S.-China talks have led to plans for a new testing protocol to ensure food safety. | credit: Katie Campbell | rollover image for more
A geoduck clam from Puget Sound. China’s ban on importing such shellfish remains in place, but recent U.S.-China talks have led to plans for a new testing protocol to ensure food safety. | credit: Katie Campbell | rollover image for more

 

By Ashley Ahearn, KUOW

U.S. officials say they will develop a new testing protocol to detect certain contaminants in shellfish, following their meeting with the Chinese government to discuss an end to that country’s ban on importing shellfish from most of the U.S. West Coast.

Representatives of the two countries’ governments met in Beijing last week for their first face-to-face discussion of China’s shellfish ban. China banned shellfish imports in December after officials there said they found high levels of paralytic shellfish poisoning in a geoduck clam from Alaska and high levels of inorganic arsenic in a geoduck from southern Puget Sound.

U.S. officials said during a briefing with reporters Friday that the Chinese are satisfied with U.S. testing methods for paralytic shellfish poisoning but they’re still concerned about arsenic. High concentrations of inorganic arsenic, a carcinogen, were found in the skin of geoduck harvested near Tacoma, Wash., last fall.

Americans don’t eat the skin. But the Chinese often do.

The National Oceanic and Atmospheric Administration’s Paul Doremus said the U.S. will develop a new testing protocol for inorganic arsenic in shellfish.

“Ultimately it is up to China to decide whether they are satisfied that our testing mechanisms and overall protocols meets their standards,” he said.

Doremus said it was impossible to say when the ban might be lifted.

U.S. officials will meet within a week to put together the new testing protocols.

The ban has been in effect since November of 2013, costing the industry hundreds of thousands of dollars.

Court Orders Agencies To Consider Fewer Hatchery Fish For The Elwha

In this 2011 photo, Lower Elwha Hatchery Manager Larry Ward feeds the steelhead and coho that are being raised in a hatchery for introduction to the Elwha. | credit: Katie Campbell | rollover image for more
In this 2011 photo, Lower Elwha Hatchery Manager Larry Ward feeds the steelhead and coho that are being raised in a hatchery for introduction to the Elwha. | credit: Katie Campbell | rollover image for more

 

By Cassandra Profita, OPB

A judge has ordered federal agencies to reconsider the number of planned hatchery fish releases into the Elwha River on Washington’s Olympic Peninsula

As crews finish the largest dam removal in history on the Elwha, managers are working to restore fish runs above the dam sites. Their plan includes releasing more than 7 million hatchery salmon and steelhead into the river.

That plan has been controversial. Some conservation groups want to see wild fish repopulate the river on their own. They’re worried that releasing too many hatchery fish will reduce the chances of wild fish reproducing. They sued the agencies in charge of the plan as well as officials with Lower Elwha Klallam Tribe, which operates hatcheries on the river.

One of their arguments was that the agencies –- including the National Marine Fisheries Service and the National Park Service –- failed to consider options that would release fewer hatchery fish into the river.

“There was no range of alternatives,” said Kurt Beardslee, executive director of the Wild Fish Conservancy. “It was either plant all of the hatchery fish or none.”

Federal Judge Benjamin Settle agreed with that argument. He’s ordered federal agencies to meet with conservation groups to consider an option that would reduce the number of spring coho salmon and steelhead released to just 50,000 apiece. Those are the numbers conservation groups proposed.

In his opinion, the judge wrote that “the court is concerned with the spring coho and steelhead releases,” and as the agencies consider options for releasing fewer hatchery fish, those proposed numbers “would be a good starting point for an agreement.”

The National Marine Fisheries Service released a statement in response to the decision noting that the judge upheld the overall hatchery plan for the Elwha River.

“Numerous reviews and a broad consensus of scientists have found that hatcheries are necessary during dam removal to prevent the wild Elwha salmon and steelhead populations from being extinguished by sediment as the dams come down,” the statement reads. “The court upheld the Federal agencies’ decisions and the hatchery plans of the Lower Elwha Klallam Tribe on all points except one.”

Oklahoma House panel approves bill to spend $40 million to complete Native American museum

By The Associated Press

OKLAHOMA CITY — A plan to take $40 million from the state’s Unclaimed Property Fund to pay for the completion of a Native American museum in Oklahoma City has cleared another legislative hurdle.

Members of a House budget subcommittee voted 8-2 on Monday, sending the bill to the full House Appropriations and Budget Committee.

Museum officials say the plan is to use the $40 million in state funds to match another $40 million in pledges the tribes and other donors to fund the completion of the unfinished museum.

The bill already has passed the Senate, but House Speaker Jeff Hickman reiterated last week he wants 51 of the 72 House Republicans to support the plan before he schedules it for a vote in the House.

Online:

Senate Bill 1651: http://bit.ly/1nLlOZc